Research tells us that different subtypes of EDS age differently, vascular EDS (vEDS), for example, carries an increased risk of life-threatening complications over time, whereas hypermobile EDS (hEDS) tends to be marked by chronic pain and early-onset osteoarthritis rather than a clear-cut decline. Feb 15, 2022 · Ehlers-Danlos syndrome can be a devastating disease in patients who are severely affected — a situation made worse by the current scarcity of treatment options. Feb 13, 2020 · For example, the life expectancy of people with vascular EDS — a type characterized by fragile arteries, muscles, and internal organs — can be severely reduced, with most patients having a serious medical event by the time they are 40. The Ehlers-Danlos Syndrome life expectancy patient guide The Ehlers-Danlos Syndrome life expectancy patient guide Ehlers-Danlos Syndrome (EDS) is a group of rare genetic disorders that primarily affect the connective tissues in the body, including skin, joints, blood vessels, and internal organs. The overall life expectancy of patients with vEDS is dramatically shortened, largely as a result of vascular rupture. The key factor influencing life expectancy in individuals with EDS is the severity of organ and vascular involvement. While the physical manifestations of EDS can vary significantly among individuals, understanding its implications on life expectancy is crucial for patients This is known as a ‘null mutation’. Signs and symptoms of EDS include stretchy skin, hypermobility, and easy bruising. What is EDS life expectancy? When someone receives a diagnosis like Ehlers-Danlos Syndrome (EDS), it’s completely normal to have concerns about life expectancy. The syndrome results in aortic and arterial aneurysms and dissections at a young age.

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